Hi All,
Hope your weekend was nice. Miss Dani had her 4th ERT on Friday. Daddy said she slept almost the whole time. Jason had blood drawn to see about him being a match for her. She is doing wonderfully and learning more everyday.
Our air conditioner went out for the 2nd time in a month. I guess if its not one thing its another. Hopefully it is finally fixed and we will be cool for the summer.
The final draft on the invite for her fundraiser is done and if you do not get a copy shoot me an email and I will send it to you. They are working so hard to get everything together and the more I hear the better it sounds. Thanks to all of you that have contributed. We will hopefully have the webite up soon and I can thank you all by name.
Join with us in our battle against the disorder affecting our daughter.
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