This is MPS Awareness Day around the world. NASDAQ will ring the opening bell in acknowledgment of it. I have been trying to get work to do a casual day for it but I think they are tired of us. Here is an independpent movie about MPS II.
http://www.jonathanformica.com/portfolio/courage.php
This is an article on a wonderful group of girls and their Mom and Dad's daily struggle.
http://www.mycommunity.com/town/Teaneck/Details_story/Three_beautiful_girls%2C_one_deadly_disease/view.php?action=Detail&type=story&sub_id=18705&area=&category=1
Please consider being a bone marrow donor. It is free to apply online until May 21st. Go to http://www.marrow.org to find out more information.
Join with us in our battle against the disorder affecting our daughter.
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