Sunday, October 28, 2007

Catching Everyone Up

Hi All,

Well Dani broke out in a rash last weekend. Grandma Boni took her into the clinic on Monday and they did some lab work. They concluded it was viral and said it would be gone in awhile. Dani has been acting fine since the week before when she got sick at Grandma Dunn's.

Her rash was better (I was putting steriod cream on it three times a day) by Wednesday. So all was good. When I got off work on Friday Kari, our nurse at clinic, called my cell phone. She said she had been trying to get a hold of us since Wednesday (good start to a conversation). With all the turmoil and new phone numbers not all the charts got updated. So she said that Dani's test for HHV6 came back positive. That is a form of Herpes. So they want to see her tomorrow. I googled it and did not like what I googled but all the negative was if she got it a couple weeks after transplant.

So I will let you all know what is going on tomorrow. She is still acting fine and as demanding as ever.

As a side note ... On Discovery Health there was a show about Mystery Diagnosises. The first half is about a wonderful little boy, Zach, that has MPS II (Hunter's Syndrome). It goes a bit in depth about MPS in general. Here is the download ...

I will be on tomorrow.

Monday, October 22, 2007


Dani broke out in a rash this weekend. All over her body. We were all very concerned and I did more research this weekend then I have in a few months. She always acted fine but the rash was not pretty. Grandma Boni took her to clinic today to get it checked out and her WBC where back up to 4.2. They think it is still viral. That is wonderful news because we were all worrying it was GVHD.

She is still acting fine and we actually ordered her new glasses today. I will take pictures when we get them in and post them. Thanks everyone for all the thoughts, help, and prayers!!!

Mason and Sara passed away last week ... On top of all that was going on it was overwhelming.

Mason's journal is at

and Sara's from what I know did not have a website but was a beautiful girl with a wonderful Mom. Our thoughts and prayers are with both of your families!!!

Thursday, October 18, 2007

A stumbling block

The above pics are from this weekend and Dani in her Halloween shirt.

Dani has not been feeling good this week. She was actually sick at Grandma's on Tuesday and very cranky all week. She does not have a fever so that is good. Anyway we were concerned so we took her to do lab work today and everything is normal except her WBC are at 2.0. Very Low. We are not happy.

So we will be keeping an eye on her and taking her back for labs next week. The good news is today she seemed to be feeling better so hopefully we are on the upswing.

Saturday, October 06, 2007

Dani and Papa (and Papa's chair)

Dani is really enjoying her time at Grandma's house. She really enjoys Papa's chair. It is one that has the massager and such in it. So when ever Papa gets up she runs over and climbs up. Then Grandma turns on all the gizmos. Mom said when Dani hears Papa coming back toward the chair she starts yelling but gets down. Yeah ... she is a bit spoiled. Go figure.
She is doing well. She says soo many words I can not even list them all. We are working on potty training still and using utensils. We are going to San Diego on Halloween to visit PJ (you might all remember him). The boys are especially excited to get a tour of the base and a naval carrier. We will also being going to the Zoo while we are there. We can not wait!!!