Wednesday, August 13, 2008

A small step back

Hi All,

Above are some pictures that Dani's donor sent from our visit. She is getting sooo big. We have had a little set back. She started daycare part time in March. She has had mutiple ear infections, multiple pink eye, and Hands, Foot, and Mouth Disease. Also if she gets bit by a bug it seems to get infected easily. So after this last bout of double ear infections, both eyes having pink eye, three bacterial infections from bug bites, and a nail on each hand peeling from the bottom up, Jason said call HemOnc and asked them. So we called and her IgG (part of her immune system) was low in November (187 and the norm is 500-1000). I am not sure still at this point why it was not rechecked this spring but we ran blood work yesterday and her IgG is at 54. So we are going to start a monthly infusion for the next six months.

Keep her in your thoughts and hope this is just a minor stumbling block.

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