Sunday, August 06, 2006
Well let us start off by saying we were not too happy with the hospital Friday. Someone dropped the ball and did not order her enzymes this week. So she is missing a week of treatment. They said they would order an extra dose this time around so it should not happen again. Very disappointing to know that you are having to rely on professional to make sure your daughter is taken care of and it doesn't happen.
Dani has a cardiologist appointment on Tuesday. I have high hopes that her heart is rebounding well with the enzyme treatments. We will definitely post and let you all know.
I forgot to mention about finding a match. The hospital has results from one cord blood match and are waiting on another. They also have one adult marrow match and are waiting on another. The cord blood are both 4 out of 6 matches and the adult marrow are 5 out of 6. They will put all the results together and pick the best for Dani.
Heather called and said we have quite a few tickets available still for Friday's fundraiser. Gather your friends and come out for a fun time. We have awesome raffle prizes and the lodge itself is beautiful. The foods is going to be wonderful also. Hope to see you there!!! The details are posted on her website (Link to the right).
Two articles to mention.
New Town mentioned the benefit in July, in their August newsletter.
And Sydney, a little girl with Hurler's, who is home in Illinois after a BMT has an article out about her that is very interesting.