Please say a special prayer for Kallie. She also has Hurler's and is +132 days post transplant. She is having issues with her heart. Stop and leave a comment if you would like.
http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=kalliegirl
Also I forgot to mention but Ethan taught Dani a wonderful trick. How to blow really juicy raspberries. The nurses were cracking up yesterday.
Happy New Year to All and I am hoping we and everyone else find some peace and happiness this year with lots of good days!!!!
Join with us in our battle against the disorder affecting our daughter.
1 comment:
Hey...... hope everything going well. The blog stopped!
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