May 18th 2006
The enzyme replacement therapy went relatively smooth today. We got to the hospital at 8:30 and left at 3:30. Hopefully we will get that time shortened as we get use to the process. She did wonderfully considering she had to be stuck for an IV and she was in unfamiliar sorroundings.
New info on the insurance. They are sending all of our information we sent them for the appeal out to a 3rd party independent source. I believe they said another transplant center. So to us (and they did not say this) they are looking past our benefit plan and at medical necessity now. So please keep prayers going and good thoughts. They said it would take 5-10 days to hear back but they were sending everything today. The BMT financial coordinators believe it might of been the media that has helped to push this further along. Also I know quite a few people sent personal emails to principal giving their opinion on the matter. Again Thanks everyone for all your help and good wishes. Its been amazing the support we have received.