Thursday, April 19, 2007

Day +161 Transfusion

WBC 12.4

Hemoglobin 7.6

Platelets 343

ANC 8928

Weight 26 lbs 9 ozs

Did not get a Bilirubin count

It was a long day but things went fine on Dani's end. Just in case there are newbies, if you are at the hospital and the say 15 minutes it really means an hour to an hour and a half. She was lower on her red blood cell count so received a transfusion. She will start the medicated infusions on Monday.

Miss Dani has started a new trend of rolling her R's when mad. With steriod she seems to be mad quite a bit. So when she is learning spanish in high school she should have a step ahead of everyone.

We arrived at the hospital around 8:30 and left at 2:30. Dani actually cut it short by pulling out the IV line from the blood warmer. Luckily we only had probably ten more minutes to go on the flush so she received everything she needed. With the warmer on there we are not given a very big leash so she actually tripped on the wheels of the IV pole and when she went down it pulled it out of the warmer. I guess they were not thinking of little ones when they invented that.
She is totally in love with the Gerber Graduate Veggie Crackers. I think we went through half a box just today. She did not sleep much so she wore both of us out. They actually did not pre-med her before the transfusion nor did they start low and ramp her up on her infusion rate. She did really good with neither being done.
It is still unclear where our journey will lead us and so far none (knocking on wood) of this is effecting Dani besides the steriods. They did say they will wean her off the steriods while doing this medicated infusion so hopefully all will work and we will be moving forward. Please keep her in your thoughts and prayers.

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